Table of Contents

Introduction ………………………………………………………………………………………1
Methods ………………………………………………………………………………………….12
Results ……………………………………………………………………………………………20
Discussion ……………………………………………………………………………………….39
References ……………………………………………………………………………………….46
Tables
1. Participant Characteristics ………………………………………………………..……..14
2. Summary of Findings, Aggregated Data ………………………………..………………25
3. Quality of Life Scores ………………………………………………………….………..26
4. Summary of Findings, Participant One ……………………………………………….…29
5. Summary of Findings, Participant Two …………………………………………………31
6. Summary of Findings, Participant Three …………………………………..……………34
7. Summary of Findings, Participant Four ………………………………..………………..36
8. Summary of Findings, Participant Five ……………………………………..…………..38
Appendices
A. Participant Informed Consent ………………………………………………..…………55
B. Staff Informed Consent …………………………………………………………………58
C. Caregiver Interview ………………………………………………………..……………60
D. Summary of Scores by Observation Interval ……………………………………………62
E. Graphs for Observational Data, Aggregated …………………………….………………68
F. Individual Quality of Life Scores ……………………………………….………………71
G. Graphs for Observational Data, Participant One ………………………………….…….75
H. Graphs for Observational Data, Participant Two ………………………………….…….78
I. Graphs for Observational Data, Participant Three ……………………………………….81
J. Graphs for Observational Data, Participant Four ……………………………….………84
K. Graphs for Observational Data, Participant Five …………………………….………….87